Fighting Blindness in inherited retinal eye disease by supporting:

  • Gene Therapy.  Human trials have taken place where young adults with only light/dark perception had healthy genes inserted and regained some sight. They were able to read part of an eye chart and negotiate an obstacle course. Trials are progressing for treatment on a larger scale.
  • Inherited Retinal Disease Register and DNA Bank – This is a national register and DNA bank  at the Sir Charles Gairdner Hospital in WA where eventually all those with inherited eye disease in Australia will be genotyped  so when a gene therapy becomes available  participants will be informed that a gene therapy is available for their eye condition. We are currently struggling to keep this going.
  • Stem cell therapy hopes to rebuild the damaged retina where gene therapy is not applicable.
  • Supply of equipment for the children of  retina Australia to help in their education such as whiteboard readers that beam back what is written or drawn to the child’s laptop where it can be saved or read in a font that can be read by the child.

Cure Blindness Australia Inc

Approximately 15,000 Australians suffer from an inherited retinal disease, not including age related macular degeneration. We raise awareness and funds for scientific research, information and peer support, to seek a cure for people and families affected by retinal degenerative diseases.

Cure Blindness Australia’s mission is to fund research which will lead to a cure for the leading cause of youth blindness and the leading cause of blindness in the working age population-retinitis pigmentosa (RP) and related conditions, and to provide information and support in any practical way to those affected.

$50  Enables blood to be taken for genotyping.

$100  Starts the genotyping process.

$500  Enables equipment to be purchased for the Children of Retina Australia.

$900  Enables the  identification of genes for future gene therapy of an individual.

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