Trail Day for Muscular Dystrophy WA 2018 has now finished

18 Aug 2018

Engaging, inquisitive and fun-loving, beautiful blue eyed Charlie Hughes inevitably captures the full attention of all who encounter him.

Charlie, who has congenital muscular dystrophy, has never walked. His health and well-being is dependent on extensive ongoing medical care and creative juggling of family resources.

“Learning that your child has muscular dystrophy is a very emotional time and the grief is ongoing. There’s plenty of joy too, but there are many continuing challenges” – Jodie, Charlie’s Mum

“The reality is that the only people who really know what you’re going through are those who are going through it as well. We found that support through Muscular Dystrophy WA.”

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